So it’s official – I’ve joined the fibromyalgia club. I hope there’s cake.
I saw a rheumatologist today (not the one I was expecting, mind), and despite her horrible bedside manner and wild opinions on random things, she decided that I’m suffering from a chronic pain syndrome.
She was hesitant to outright diagnose fibromyalgia. She claimed I only had 6 out of the 18 tender points (but, since she didn’t examine me properly, missing out several areas, I wholeheartedly disagree). But she said that my treatment would be identical to that for someone with fibromyalgia, and so that label does in fact fit me. It definitely makes it easier, being able to put a name to the demon.
She’s started me on amitriptyline, a tricyclic antidepressant that’s supposed to help with pain and sleeping. I’ve also been referred for physio and further tests, and I’m starting yoga in a couple of weeks. And I’m going to watch my diet and try to get some more light exercise.
I’ve recently started taking CBD oil for the pain (and will be doing a blog post on this in the coming weeks), and have various pain relief gels.
As we know, there’s no cure for fibromyalgia. All we can do is manage our symptoms and hope for the best. My current goal is to lower my levels of pain and exhaustion, and be able to increase my activity – I miss being able to go for walks in the sunshine.
The road will be long, and it will be arduous, but having formal recognition that yes, I am in pain, and yes, I do need treatment, has lifted some of the weight from my shoulders. Now to deal with the day-to-day management of this horrible disease.
How do you live with fibromyalgia? Share your story and give me your tips in the comments below, or at firstname.lastname@example.org.